Abstract: |
Introduction: The increase in long-term conditions (LTCs) and multimorbidity, particularly in older people, has led to increased demand in health and social care. Patients with multimorbidity need a seamless connection between the health and social care systems as well as between the different carers. However, health and social care systems currently present these patients with a variety of options for highly specialised care, provided at different settings. With little to no guidance, patients are expected to select the providers and services they need in relation to the LTCs they are diagnosed with. They build as it were their own ‘personal care network’ (PCN), but the structure of these PCNs is unknown. Further, the use of care navigators to guide patients with multimorbidity is limited and not without obstacles. A promising opportunity to address the care navigation challenge in this group is that of Information and Communication Technology (ICT). Research shows that ICT can provide valuable opportunities for older people, especially by supporting age-related needs while also reducing the cost of health care. However, there are no insights into the benefits of ICT on navigation through the care system. This PhD explores the feasibility, acceptability, and requirements establishment to support the design of ICT interventions to support older adults with multimorbidity to independently navigate the care system. Method: A mixed method approach is applied combining the use of questionnaires and semi-structured interviews. Social network analysis and descriptive statistics are used for the quantitative data. Qualitative data are analysed through framework analysis. All data are then integrated and reported in the form of data-driven personas. Results: Firstly, we bring together the existing literature around care navigation in older people with multimorbidity. We then visualise the PCNs of older people with multimorbidity and gain an understanding of how these PCNs function. Following this, we investigate how ICT can provide a sustainable alternative for care navigation support in older people with multimorbidity (the end-users). This includes the identification of end-users’ needs and requirements for such an ICT support tool. The fifth phase concludes this PhD by producing usable personas of older people with multimorbidity. |